RSkaiRWE

One dashboard for pharma RWD and RWE resources, organized by disease indication.

SkaiRWE is a curated source map across FDA, CMS, AHRQ, NCI, PCORnet, CDC, ACC, CFF, the APCD Council, and major commercial vendors. Layer A holds the authoritative provenance; Layer B is what you read here.

7 curated resourcestaxonomy synced from SkaiPharma
Catalog entries
35
Layer B published rows
Free resources
16
open APIs, portals, public files
Permissioned
19
application / fee / mixed
Indications
132
across 7 territories
FDA guidance
6
2018 → present
Showing 7 of 7 resources

PCORnet

PCORI / PCORnet

Application
Registry / Networkcross-indication

National distributed research network connecting standardized real-world data from more than 47 million people.

cardiologyimmunologyneurology#cardiology#common_data_model#cross_indication#distributed_network
1 attestationView details →

PRO-CTCAE

NCI

Free
Patient-Reported

NCI measurement system for patient-reported symptomatic toxicities in cancer research.

oncology#oncology#pro#symptoms#toxicity
1 attestationView details →

Purple Book

FDA

Free
Regulatorycross-indication

Searchable database of FDA-licensed biological products, including biosimilars and interchangeable products.

immunologyoncology#biologics#biosimilars#cross_indication#immunology
1 attestationView details →

SEER

NCI

Application
Registry / Network

Population-based U.S. cancer surveillance and statistics program with research data products.

oncology#cancer_registry#incidence#oncology#survival
1 attestationView details →

SEER-CAHPS

NCI / CMS

Application
Registry / Network

Linked dataset connecting SEER clinical cancer data, CAHPS survey data, and Medicare claims/enrollment files.

oncology#claims#linked_data#oncology#patient_experience
1 attestationView details →

SEER-MHOS

NCI / CMS

Application
Registry / Network

Linked dataset combining SEER with Medicare Health Outcomes Survey data.

oncology#health_outcomes#linked_data#oncology#pro
1 attestationView details →

SEER-Medicare

NCI / CMS

Application
Registry / Network

Linked oncology resource combining SEER registry data with Medicare enrollment and claims.

oncology#claims#linked_data#medicare#oncology
1 attestationView details →